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Category Archives: {our fanconi anemia journey}

fanconi anemia, bone marrow transplant

5k for FA

Coming up on May 2, an event to benefit the Fanconi Anemia Research Fund! Eli, who is ten years old, has Fanconi anemiaView full post »

Happy Third Re-birthday, Eli

April 22. Each year I look forward to this day as much as I do any of my children’s actual birthdays. Maybe evenView full post »

The First Beginning

The following post was dug out of my dusty archives from 2010. It is a story I wrote about how things started with Eli,View full post »

Miracles: Eli’s Bone Marrow Transplant

Eli’s Transplant Story In February 2011 my son Eli was diagnosed with Fanconi Anemia. FA is an inheritedView full post »

Thank You Michael

Because of a boy named Michael Wrobel, my son Eli’s bone marrow donor Denise joined the bone marrow registry inView full post »

Meeting Eli’s Bone Marrow Donor

The following video was shown at the Rhode Island Blood Center’s annual awards dinner on October 18, 2012. ItView full post »

2.00 for 2 Million to Benefit the Fanconi Anemia Research Fund {FARF}

Things that cost $2 A soda Two Power Bars The Sunday paper A loaf of bread A pair of shoe laces An app for your smartView full post »

Dearest Donor

Letter Written June 2011 I waited quite a while before sharing such a personal note, but I thought perhaps someone wouldView full post »